Coping with Diagnosis, Managing A.S., Reflections

Going on Biologics takes a lot of Prep!

In the middle of my month of Walking My A.S. Off, I started to wonder if I was making a mistake not beginning the biologics. As I looked back on the tracking of my flare ups, I realized that I had been having more bad days than good days. The reality began to set in… Continue reading Going on Biologics takes a lot of Prep!

A.S. awareness, Coping with Diagnosis, Reflections

Reflections on a month of walking my A.S. off…

31 days. 201,738 steps.  In a nutshell, that was the story of my first time Walking My A.S. Off along with fellow spondylitis sufferers and their friends, advocates, allies, families, et cetera, from around the world. I had no idea when I started walking that it would be such an emotional rollercoaster. From good days taking… Continue reading Reflections on a month of walking my A.S. off…

Reflections

The things no one tells you when you are diagnosed with a painful chronic illness…

Chronic illness leaves you feeling like you’re letting everyone down—especially yourself. It’s a constant game of adjusting expectations, rethinking assumptions, and regulating hopes. That deadline you’re trying to meet, that show you really wanted to go to, the pile of dishes in your sink, your friends who you want to see… all of these priorities… Continue reading The things no one tells you when you are diagnosed with a painful chronic illness…