There. I said it. I hate the spoon theory. What is this “spoon theory”, you ask? It’s a metaphor developed by a woman named Christine Miserandino, who has Lupus. This was her attempt to describe what it means to be chronically ill. In the chronic illness community, it’s become shorthand for describing our conditions, our energy… Continue reading I Hate the Spoon Theory
Thursday, August 24, 7:30am I’m awake. I’m in pain. It takes a few minutes for my brain to get going, but when it does, I realize, today is the day. After two months of preparation, this afternoon I will have my first shot of Enbrel. The last time I updated this blog, it was in the… Continue reading I’m a Thursday Girl, or … It’s Enbrel Day!
In the middle of my month of Walking My A.S. Off, I started to wonder if I was making a mistake not beginning the biologics. As I looked back on the tracking of my flare ups, I realized that I had been having more bad days than good days. The reality began to set in… Continue reading Going on Biologics takes a lot of Prep!
31 days. 201,738 steps. In a nutshell, that was the story of my first time Walking My A.S. Off along with fellow spondylitis sufferers and their friends, advocates, allies, families, et cetera, from around the world. I had no idea when I started walking that it would be such an emotional rollercoaster. From good days taking… Continue reading Reflections on a month of walking my A.S. off…
It's May, and you know what that means? It's time to join other spondys and spondy-supporters as all over the world we lace up our best walking shoes and head out on the town to spread awareness of ankylosing spondylitis. It's wild to think that one year ago, when the people, who now feel like… Continue reading Walkin’ my A.S. Off for the Month of May